MPN is a rare blood disorder that affects between 1 in 100,000 to 1 in 300,000 people. MPN Clinical Trials are the only way to evaluate MPN treatments and provide MPNs with improved quality of life. MPN clinical trials are conducted by medical professionals who specialize in the study of MPNs. This article will introduce you to various ways you can understand MPN clinical trials.
What is an MPN trial? An MPN trial is a type of drug study where participants are either given medication or a placebo (a sugar pill). These studies involve many procedures including lab tests, imaging scans, and more. MPN clinical trials are conducted by MPN researchers.
What is MPN research? MPNs have a specific gene mutation that causes the disease, so MPN researchers study this mutation to better understand how it impacts blood cells and other parts of the body.
By studying MPNs, scientists hope to discover new treatments or cures for this condition. Some MPN clinical trials test medications already used in standard treatment while others involve testing entirely new drugs on humans for the first time (this is called an investigational drug).
Participating in one of these studies can be helpful because participants may access medication not available commercially outside of a trial setting. However, participating in some types of MPN studies also means more frequent visits and lab tests than if you were following standard MPN treatment.
How do I find out about clinical trials for my condition? A good place to start looking for MPN clinical trials is on the MPN Research Foundation website.
How can I participate in an MPN trial? To be a part of an MPN Clinical Trial, you must first check with your doctor to see if they have any studies going on at their clinic or nearby hospitals. If not, contact the MPN Research Foundation directly and ask them about possible opportunities near you. Once enrolled in a study, participants will need to commit time every few months (or more) for testing procedures such as blood sampling and imaging scans. Participation is free of charge.
MPN clinical trials are designed to find new, more effective treatments for MPNs. The goal is to conduct research that will improve patient’s lives by finding better treatment options or even a cure! There are two main types of MPN clinical trials: observational studies and interventional studies. Both study types seek participants who have been formally diagnosed with an MPN condition. Participants in both kinds of studies receive care at no cost – doctors, nurses, researchers all work together as team dedicated to improving the health and well-being of patients living with MPNs worldwide!
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